Singapore Cerebral Palsy Registry
Launched in September 2017
The Singapore Cerebral Palsy Registry aims to improve the overall understanding of cerebral palsy in Singapore, to assist in the future planning of services and resources for persons with cerebral palsy. It was set up by Cerebral Palsy Alliance Singapore (CPAS), KK Women’s and Children’s Hospital (KKH) and National University Hospital (NUH).
The registry tracks and consolidates data that will be instrumental for future medical research and improvement of services for those with cerebral palsy.
Background
Cerebral palsy is one of the most severe disabilities in childhood and makes heavy demands on health, educational and social services as well as on families and children themselves.
In recent years, survival amongst children with severe disabilities has increased. This implies that there is a need for appropriate services to be provided for children with CP through adolescence and into adulthood. However, there is a huge information gap in the understanding of the number and the needs of this group of children. Therefore, more comprehensive data on CP is needed to establish the actual incidence and prevalence of CP and understand the needs and health-seeking behaviour of these children. This in turn will facilitate evaluation of the clinical outcomes, guide service provision and foster further research in this chronic neurological condition with a high care burden.
To join the study, please contact our authorised study personnel at
Ms Nirmala Gopiendran at +65 6585-5612 or nirmala_gopiendran@cpas.org.sg
Study Principal Investigators:
Dr. Ng Zhi Min, Department of Paediatrics, KK Women’s and Children’s Hospital
Dr. Jeremy Lin, Department of Paediatrics, National University Hospital